I don’t have many words right now, so this is much better. A preview of stuff I have been working on for Tumblr and for my May Awareness Campaigns for Lupus, in collaboration with a friend I met on Facebook through another wonderful spoonie. She mentioned doing a May Lupus Awareness campaign and jolted my memory that i need to plan something for May Fibromyalgia Awareness Month too. So I did, and here are some of the ones I have for my campaign on this blog.
Here is the collaboration piece I designed to use as a template for a series of 30 Lupus Facts that Megan at RunItOnTheTopQuarter.blogspot.com is going to be putting up every day next month. She hasn’t been blogging for a while, so if everyone could go over there and show her some love, that would be fabulous and I know she would appreciate the good will from other spoonies. If you follow her blog now, you’ll be ready in time to get all of her advocacy and awareness posts in May and beyond. ❤
A thoughtful, well-made list of extra steps to take when you are experiencing a flare-up of symptoms, no matter what illness(es) you may suffer from. The author, Audrey, was diligent about this list and surveyed others to get a more complete array of options. I feel like there is something on this list for all of us, and as Audrey says in the post, “Because, let’s face it, when we are in the throes of a serious bout of turmoil, we forget. We forget to reach to those resources we so carefully crafted, selected. We forget the hours we poured into trial and error sessions to find what works best to help us and when.” She is so right. I love having a place to refer to when I am hurting so bad I can’t steer my thoughts away from the illness and pain. Even if I don’t feel capable of doing everything on this list, I can always do one thing, and the more I practice these techniques, the better I become at accepting and making peace with my illnesses.
Having a tool box is essential to coping with a chronic condition whether it be pain, illness, depression or some other continuous issue. A tool box helps us get through moments, sometimes days and maybe weeks but the true purpose is to help us see passed the hard moments we don’t know how to manage.
Now, I’m not talking about an actual Craftsman tool box because it’s a bit big and unrealistic for most of us, but if you find that helps, awesome. I’m talking about a box of resources for all the challenges we face on an on-going basis. Sometimes it helps to have an actual box with these things listed inside, perhaps on slips of paper, or filled with happy thoughts, other times an excel or word document, notebook, fridge magnet, or other key reminders. Because, let’s face it, when we are in the throes of a serious bout…
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Distraction Therapy and Art Therapy, rolled into one happy technique for doodling away the pain. I really do love this idea and immediately decided to go buy a few of these coloring books for adults!
This is one I sketched with pen and meticulously colored in with cheap watercolor pencils so as not to go insane while I was working at the Oregon Museum of Science and Industry, in the theater, in the dark, well before I had this kind of chronic pain or illness:
I totally remember how calm I felt while I did this and think this might be a new favorite distraction technique. Big thanks to Moongazer for the wonderful idea and for sharing it with everyone!
Distraction Therapy was first mentioned to me by an Occupational Therapist after my surgery but when I asked her for ideas (expecting her to have loads up her trained professional and experienced sleeve) she basically shrugged at me and googled ‘meditation’
So it is worth sharing snippets and suggestions amongst ourselves, methinks.
I find that sometimes, especially during a flare up of my FM, when the pain pills aren’t quite enough, sleep isn’t happening, and I am either too ‘foggy’ or bored or just plain restless for other things to occupy me – there is something I sometimes turn to as a distraction.
I have actually ummed and ahh’d a bit over posting about this, because I imagine there are people out there who might find this amusing, silly perhaps. But I saw another post about it the other week and decided Stuff it!! I will write about it.
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