Precious Diagnosis: What’s in a Name?

From my favorite blogger and one of my best friends in the whole world, this is a timely piece for rare disease month.

aBodyofHope

radiograph_of_my_sorrows_by_nataliadrepina-d77qw55Radiograph of my Sorrows by Natalia Drepina 

Even if it’s a terrible diagnosis, you crave even the worst titles, just to have a name. Just to put a label on what your body is experiencing. You dream of a diagnosis for the madness eating away at your body and your life.

You want to scream when test after test comes back normal, appointment after appointment with no answers, and you wonder how much longer your body will hold out like this! Each frustrated physician and healer is at a loss and they know anything more they try could likely only make you worse. So one by one, they set you free into the river of uncertainty to face the un-named beasts in you alone– ALONE.

Instead of one diagnosis, you have a list of conditions that you don’t feel are your own. They are more like guesses your…

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About Jessi Finds Out Fibro

Hi, and thank you for finding your way to my corner of the web! I'm on a journey to empower myself and hopefully others through shared courage and compassion. I write Finding Out Fibro, a chronic illness and chronic pain awareness blog that is not just about fibromyalgia, as well as a new project making jewelry under the Etsy name Hopeful Spoon. Please check out the shop and share if you can! Thank you for your support! My other hobbies include defeating ableism anywhere I find it, upcycling old junk into funky awesomeness, raising my voice to erase stigma against invisible illness and mental illness, baking, collecting vintage kitchen ware, sharing body-positive messages, playing around in photoshop, abstract painting (especially in neons and metallics!), advocating for those living with chronic illnesses and mental health challenges, seeking safety and upholding visibility for LGBTQIA individuals living with physical and mental disabilities, researching and testing plant-based remedies for chronic pain, and spending all my spare spoons in my veggie garden. This is my opportunity to do more than just survive with chronic illness. This is me learning how to live well, even though there is no cure for the war my body is waging on me.

One response to “Precious Diagnosis: What’s in a Name?”

  1. abodyofhope says :

    Thank you for sharing this, my darling! You made my day so much brighter. I had you on my heart as I was writing it. It doesn’t make sense that the worse off, and more complex we get, the less likely we are to receive proper help. So thankful we have each other to go through this confusing lonely battle with!

    Liked by 1 person

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