I hesitate to admit this, but it’s important. Before i got sick I was already pretending to be normal, pretending to be happy and productive and on some sort of trajectory, but I was just as lost as I am now. I have been dealing with severe anxiety disorders my entire life, ADHD, obsessive behaviors too numerous to list, occasional bouts of treatment resistant depression, insomnia, self-injury, severely restricted eating or binge eating depending on the year, as well as growing up with chronic pain to a much lesser degree than now in the form of frequent dislocations/subluxations, migraines, and dizziness/nausea, all of which went untreated for a long time, or treated but not correctly.
Now that I have a series of chronic illnesses/conditions, my mental health is under the microscope constantly. It has been enlightening but also terrifying. Not being able to hide my mental health or my physical health anymore is the part I’m still trying to accept. I’m used to being miserable to a degree and pushing through, always pushing through, and to have my body take that ability away from me has caused some serious grieving.
The thing I was most commended for other than my test scores was my ability to pretend like I wasn’t hurting while I was, both physically and mentally. All of the bits and pieces that make me my own person are also things that drew negative attention when I was younger, and I have trouble getting over that still.
My response to the negative attention, eventually, was to reinvent myself to be as normal as possible, as plain as possible, to not stand out too much, and to deny my artsy, nerdy, angsty side the freedom it wanted. Now I’m left with artsy, nerdy, angsty as things I need to learn to be proud of and to embrace again. I want to, I really do.
Those parts of me which long for the freedom to reinvent myself into the person I really am are winning. My hair is teal, my clothes are whatever the hell I feel like, I have been writing more honestly and openly, and I have picked up a paintbrush again.
So the path is there, I know what I need to do, but I’m scared to be myself again. For so long I’ve been this average-intelligence, straight, workaholic, brown-haired, plain-clothed girl who kept the ugliness and the oddness to herself, absolutely devoid of the desire to write the darkness inside of me or to paint it, only allowing thoughts out through a careful filter, and calling that happiness. It wasn’t. Neither was it sadness, exactly. I was just going in the wrong direction.
The reality is that my careful filter is broken now and only works in fits and starts… I can’t be anyone other than the person I have always been underneath the normal life I was trying to build around me like armor. I still love the interests I have cultivated while lost and wandering through life; I still love to garden, bake, and make my own home and beauty products. I absolutely still love my boyfriend, as well as this house and our cat. This is simply my soul wanting me to unleash it in any way possible in my new life, with my new limitations. I need to find a purpose, yes, but I also need to find myself again, be kind to myself instead of denying myself the freedom to be weird and potentially wonderful. So much anxiety must be tied up in the act of pretending not to be excited about the things that truly make me happy.
I don’t fully know what my happiness will look like now, but it will look different than the one I pretended was right for me.
To be honest, I’m relieved.
There are parts of me that are stronger than ever, and then obviously there are parts of me that are so weak that they have stolen life and time from me. But I am a survivor. This is me surviving. It might not be pretty, the struggle can get ugly and mean in an instant, but I have always survived, and I will continue to do my best. That will have to be enough.
I’m not any less okay than I was yesterday or the day before, I am simply not willing to pretend to be better or different than I feel. Some days I am still a suicidal teenager and some days I am a sage adult, and many days I bounce back and forth between the two. However, both are okay, both are me, and I am always going to be a survivor, even when I have no idea what else I am.
The term survivor implies that someone came through or currently resides in hell, however, and that is the part that people seem to forget. The struggle is what breaks you, but it is also what rebuilds you. We cannot be the same after we travel through nightmares turned reality.
Not the same, but certainly still me.
I am just too exhausted to draw a silver lining on my clouds today. Today it’s okay to acknowledge the storm overhead. To be soaked in it and shivering and afraid of the power behind it, but to remember that the sun also exists, just beyond those clouds.
Tags: #ButYouDontLookSick, #chronicfatigue, #chronicpain, #fibromyalgia #chronicfatigue #chronicpain #chronicillness, #IBlogForMentalHealth, #PainWarriors, ADHD, adjusting to life with illness, advocacy for invisible illness, anxiety, Anxiety Disorders, art, art therapy, Awareness, being happy, being okay even when I'm not, binge eating, brain fog, but you don't look sick, CFS, CFS/ME, childhood chronic pain, chronic fatigue, Chronic Fatigue Syndrome, chronic illness, chronic illness & relationships, chronic illness changes you, chronic illness survivor and fighter, chronic invisible illness, chronic pain, Chronic Pain Awareness, communication, Complex PTSD, Complex Regional Pain Syndrome, creativity, creativity and chronic illness, CRPS, Degenerative Disc Disease, depression, difficulty adjusting to chronic illness, disability, disability and self-esteem, Dysautonomia, EDS, Ehler-Danlos Syndrome, empathy, enduring chronic illness, fear, fibro fog, Fibromyalgia, fight like a girl, finding a path after a life changing diagnosis, findingoutfibro, flare up, food restriction, friendship with chronic illness, GAD, giving myself artistic freedom, guilt, healthy self-esteem, I Blog For Mental Health, Insomnia, invisble pain, Invisible Illness, invisible illness awareness, JHS, Joint Hypermobility Syndrome, learning to endure, learning to love myself, life changing illnesses, loneliness & illness, mental health, mental health stigma, mental illness and chronic pain or chronic illness, migraine, not pretending to be okay to make other people happy, obsessive behavior, Occipital Neuralgia, pain, pain warrior, RSD, self-care, spoonie, staying strong, support network, survivor, TMJ Disorder, trigger warning
About Jessi Finds Out FibroHi, and thank you for finding your way to my corner of the web! I'm on a journey to empower myself and hopefully others through shared courage and compassion. I write Finding Out Fibro, a chronic illness and chronic pain awareness blog that is not just about fibromyalgia, as well as a new project making jewelry under the Etsy name Hopeful Spoon. Please check out the shop and share if you can! Thank you for your support! My other hobbies include defeating ableism anywhere I find it, upcycling old junk into funky awesomeness, raising my voice to erase stigma against invisible illness and mental illness, baking, collecting vintage kitchen ware, sharing body-positive messages, playing around in photoshop, abstract painting (especially in neons and metallics!), advocating for those living with chronic illnesses and mental health challenges, seeking safety and upholding visibility for LGBTQIA individuals living with physical and mental disabilities, researching and testing plant-based remedies for chronic pain, and spending all my spare spoons in my veggie garden. This is my opportunity to do more than just survive with chronic illness. This is me learning how to live well, even though there is no cure for the war my body is waging on me.
sign up for Ebates for FREE and get cash back on all your online purchases!
Read My Guest Post On Distraction Therapy For AXIS Dance Company's Blog
Help me afford to adapt my life around my illnesses by starting your own Free 30-day trial of Audible or click the link and complete any regular shopping on Amazon once you're there.
I make $5 when you start your free 30-day Audible trial and 4-6% of every purchase made on Amazon within 24 hours of using this link.
THANK YOU FOR YOUR SUPPORT!
- 117,021 lovely readers
Looking for Something Specific?
- Precious Diagnosis: What’s in a Name?
- Seeing Possibility
- Neurontin and Lyrica are a Death Sentence for New Brain Synapses
- Gift Ideas for People with Chronic Illness and Disabilities
- Distraction Therapy, A Guest Post For AXIS Dance Company’s Awesome Blog, And Exciting New Business Ventures
- Harms/Benefits of Somatic Symptom Disorder
- The Autonomic Nervous System & Why It Matters
- A Spoonie Poem for All With Chronic Illness
- Staying Present During A Flare Up
- Ehlers-Danlos Syndrome Medical Emergency Information Cards