Do You Have a Favorite or Inspiring Book that has Helped You Through Illness or Chronic Pain?

I just received Toni Bernhart’s ‘How To Be Sick’ from my mom while she is visiting Portland for a week, and I’m super excited to read this one, but holding it in my hands made me realize how much I read about chronic illness online and how weird it is that I have never picked up a single book about it the entire time I have been ill. That is odd, right? I used to read a book a day, for about a decade between 3rd grade and the middle of high school, and then suddenly reading and I broke up. I also broke up with writing at that time, and didn’t look back except with nostalgia and faint longing to be able to sit down and pour everything I wanted to say out on a few pages and be free from it. I’m not really sure what happened, if I just lost faith in my intelligence and abilities, if I wanted to focus on other things creatively, or if it’s because I started working and suddenly reading and creativity both were not as important as before.

For whatever reason, it’s been a long time since I’ve read more than a book a month (even less lately), although I read voraciously online and peruse a wide variety of articles from scientific journals to nonfiction, self help to romance, blogs to buzzfeed, human interest stories to medical news, campaigns and conspiracy theories. You name it, I probably stumble across it and get sucked into reading about it all day long at least once every few months.

Since I read every day online, I figured maybe part of my self care routine and something to help recharge my creativity could be to set aside just ten minutes at first each day to read printed media, more if I care to (and I usually do). It’s been interesting because most of the books I have picked up to re-read from my extra-super-nerdy childhood do not interest me, except the books about space and quantum physics, and the collection of beat poets and writers I still love so very much. I have made a promise to myself to buy a book a month from now on, and the next one is Milk and Honey by Rupi Kaur, but after that I have no idea!

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Right now, I’m looking for books that focus on similar themes to ‘How To Be Sick’, especially the mindfulness aspect, but also things that may appeal to caretakers and are eye-opening or have been life-changing for ya’ll.

I you can think of any books that have particularly helped you on your journey, or that have spoken to your as a caretaker, I would love to get suggestions for my next read after ‘How To Be Sick’.

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Hopefully I will be able to update more frequently in the next few weeks and read more blogs, both things I have been seriously neglecting. I have some new paintings to share, and they’re not extravagant or anything to get too excited about, but it just feels good to be creating something, no matter how small or simple.

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About Jessi Finds Out Fibro

Hi, and thank you for finding your way to my corner of the web! I'm on a journey to empower myself and hopefully others through shared courage and compassion. I write Finding Out Fibro, a chronic illness and chronic pain awareness blog that is not just about fibromyalgia, as well as a new project making jewelry under the Etsy name Hopeful Spoon. Please check out the shop and share if you can! Thank you for your support! My other hobbies include defeating ableism anywhere I find it, upcycling old junk into funky awesomeness, raising my voice to erase stigma against invisible illness and mental illness, baking, collecting vintage kitchen ware, sharing body-positive messages, playing around in photoshop, abstract painting (especially in neons and metallics!), advocating for those living with chronic illnesses and mental health challenges, seeking safety and upholding visibility for LGBTQIA individuals living with physical and mental disabilities, researching and testing plant-based remedies for chronic pain, and spending all my spare spoons in my veggie garden. This is my opportunity to do more than just survive with chronic illness. This is me learning how to live well, even though there is no cure for the war my body is waging on me.

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