Splinting & Bracing for Management of Hypermobility Syndrome / Hypermobile Ehlers Danlos Syndrome
As a continuation of Rare Disease Month and my hope to spotlight Ehler-Danlos Syndrome and how it effects individuals so profoundly. This is a wonderfully illustrative post on how EDS’ers lives are full of protective gear to keep our joints from subluxing and dislocating all the time. I cried with hope when I read this post. Maybe if I get the diagnosis settled with a genetic test once and for all, maybe then I can get some of this much needed equipment and start to have a totally different quality of life in which I can participate much more actively in physical therapy, something I badly, badly want to be able to pursue without further injury like the last four places I went. This woman’s post gave me so much hope for the future. I cannot thank her enough for all the great ideas to return to once I can see the genetic counselor.
Ok So another EDS related post but a topic that has generate a lot of interest and debate in the past and will probably continue to do so!
I am one of those EDSers who has a brace for almost every body part! (I’m missing a few) The 1st question that most bendie’s will have is how on earth did I get them all off the NHS? and the 1st questions for most medical professionals will be how on earth do I have any muscle tone left?!
My personal approach to splinting is not to replace the muscle/ligament/tendon part of the joint or to detract from its functioning but to stop my joints from getting into un-natural positions and to stop myself from doing any more damage to my already wonky body.. I ONLY wear splints when there is a RISK to my joints, I don’t splint my knees and ankles if I know…
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