Invisible Illness Awareness Week

Yesterday marked the start of Invisible Illness Awareness Week. As I am suffering from several of those, in true spoonie fashion it has taken me two days to finish what used to take me five minutes.

Many invisible illnesses are misunderstood, and therefore sometimes the only knowledge that the general public may have of them is complete myth and falsehood, or the Dr. Oz show, which is pretty much the same thing. It is up to patients, caretakers, and friends to start to reverse some of the stigma caused by misinformation, and have an honest conversation about what it is really like to live with various chronic illnesses.

This Invisible Illness Awareness Week, let’s bravely and unselfishly share our experiences with chronic invisible illnesses.


Invisible Illness Awareness Week

Appearances can be deceiving. Research and reach out to those with chronic invisible illnesses.

As someone suffering from a list of chronic conditions that have chosen to manifest in a severe and sudden snowball effect over the last few years, I don’t expect my willingness to share my health struggle to change my life. I don’t necessarily expect anything from chronicling my illnesses, except that hopefully it will resonate with someone else who is trying to cope in the aftermath of a diagnosis that changes their life forever.


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About Jessi Finds Out Fibro

Hi, and thank you for finding your way to my corner of the web! I'm on a journey to empower myself and hopefully others through shared courage and compassion. I write Finding Out Fibro, a chronic illness and chronic pain awareness blog that is not just about fibromyalgia, as well as a new project making jewelry under the Etsy name Hopeful Spoon. Please check out the shop and share if you can! Thank you for your support! My other hobbies include defeating ableism anywhere I find it, upcycling old junk into funky awesomeness, raising my voice to erase stigma against invisible illness and mental illness, baking, collecting vintage kitchen ware, sharing body-positive messages, playing around in photoshop, abstract painting (especially in neons and metallics!), advocating for those living with chronic illnesses and mental health challenges, seeking safety and upholding visibility for LGBTQIA individuals living with physical and mental disabilities, researching and testing plant-based remedies for chronic pain, and spending all my spare spoons in my veggie garden. This is my opportunity to do more than just survive with chronic illness. This is me learning how to live well, even though there is no cure for the war my body is waging on me.

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